Living with Dementia: A Personal Diary by Alastair Stewart
Dementia is a complex and challenging condition that affects not only the individual diagnosed but also their loved ones. In this diary entry, Alastair Stewart shares his experiences navigating life with dementia, highlighting the importance of support, the challenges of daily tasks, and reflections on personal loss and societal issues.
A Positive Start to the Week
The week began on a hopeful note for Alastair, with a text message from the Department for Work and Pensions (DWP) confirming receipt of his application for attendance allowance. This benefit is crucial for individuals living with dementia, as it can provide financial support that leads to additional benefits like pensioner credit and assistance with council tax. Completing the complex 28-page application was made easier thanks to the help of a close friend, a former NHS occupational therapist. Alastair emphasizes the importance of community and friendship, reminding readers that those living with dementia often have friends willing to lend a helping hand.
Coping with Loss
Tragedy struck the community when the beloved owner of the local garage passed away. His reputation for trustworthiness and kindness was a rarity in the motor trade, and his loss was felt deeply by the villagers. Alastair reflects on his own circumstances, noting that due to dementia, he no longer drives. This decision, while difficult, was made in light of the condition’s side effects, such as impaired spatial awareness and reaction times. He acknowledges the importance of safety and the legal implications of driving with a diagnosis.
Navigating Customer Service Challenges
Alastair shares a frustrating experience with his partner Sally’s car, which developed a knocking sound. The extended warranty provider rejected their claim, and attempts to resolve the issue were met with poor customer service. Alastair’s daughter stepped in to assist, but the lack of communication from the warranty company highlighted the challenges faced by those with dementia when dealing with complex systems. He advises readers to thoroughly research vehicle dealerships and warranty providers before making a purchase, emphasizing the need for transparency and reliability.
Reconnecting with Old Friends
Amidst the challenges, Alastair finds solace in reconnecting with old friends. Ruari McCallion, a former colleague from his days with the National Union of Students, reached out to arrange a tea outing. Their conversation touched on pressing economic issues, including concerns about higher taxes and their potential impact on innovation and growth. Alastair reflects on the political landscape, noting that while change is often promised, the fundamental rules of economics remain unchanged.
The Struggles of Modern Technology
As Alastair navigates the complexities of modern technology, he encounters difficulties with his mobile phone provider, ‘3’. The suggestion to set usage limits and monitor accounts online proved challenging due to the cognitive hurdles posed by dementia. The recommendation to visit a physical branch was impractical, highlighting the barriers faced by those with mobility issues or cognitive impairments in accessing essential services.
Remembering a Great Leader
The week also brought the sad news of the passing of General Sir Mike Jackson, a respected figure in British military history. Alastair recalls a dinner with Jackson, where the general’s charisma and leadership qualities shone through. Jackson’s famous refusal to escalate tensions during a critical moment in NATO history serves as a reminder of the weighty decisions leaders must make. Alastair fondly remembers Jackson’s presence, his enjoyment of a good whisky, and his ability to engage with others while maintaining composure.
Conclusion: Finding Strength in Community
Alastair Stewart’s diary entry provides a poignant glimpse into the life of someone living with dementia. Through the ups and downs, he emphasizes the importance of community, the challenges of navigating bureaucracy, and the need for understanding and support from society. His reflections on loss, friendship, and the complexities of modern life resonate deeply, reminding us all of the strength found in connection and the resilience required to face life’s challenges. As Alastair continues his journey, he remains hopeful and determined to share his experiences, fostering awareness and understanding of dementia in the broader community.